Feel as though I ought to have a little more to say for myself at the moment having been so blog-gy over the last month or so. However, it feels as though life is slightly on hold – which is pretty ironic under the circumstances.
As I mentioned in my last post I had my first dose of Pembro and the hospital experience couldn’t have gone more smoothly. Unfortunately I then felt pretty rough for 24 hours afterwards as was very tired and also managed to produce pain in pretty much every joint in my body, even my face hurt. Thankfully it wasn’t too bad and also didn’t last terribly long but it did take me a little by surprise. My ‘team’ at the hospital don’t seem to think it can have been a reaction to the Pembro itself as it came on so quickly and they’ve suggested it was either a response to the infusion or a random viral thing. I’m not convinced but either way, happy to be feeling much better again and will be better prepared next time!
So other than that, I really don’t have a lot to say for myself. I think until I have a few more infusions and my scan in mid July it’s hard to say how I feel and it’s very hard to make any plans. I’d very much like to book a summer holiday for the four of us but that’ll have to wait until I know whether the treatment is working so instead I’m spoiling myself with treats like lunches with friends, massages and lots of reading in my lovely new garden. Also the little rush of treats and the fact that Andy and my delightful friends have kept my house full of flowers has given me plenty to smile about. I have no choice but to live in the now and there are very many advantages to it but it doesn’t stop me really wanting to book a summer holiday and make some plans…..
I’d very much like to add some more intrepid guinea pig pictures but think the title of this blog is pretty telling… not feeling especially pioneering, not allowed to be adventurous, instead just treading water but hoping that no one empties the pool in any great hurry. (So happy with my idiom/metaphor – although didn’t know that’s what it was – feel much chirpier now).